I promise I have tried to post for the past couple days and for one reason or another, I have not been able to do it. There are so many things running through my brain right now, I am not even sure where to begin.
Avery update first. She is still EXTREMELY swollen. This has turned out to be a fairly significant setback. The doctors have tried numerous drugs to help her pee more and she just isn't responding. I am freaking out. She looks absolutely horrible and there is no progress being made. It is really hard for me to see her right now and quiet honestly, I dread walking in her room every morning. I leave feeling disappointed and out of hope. I don't know why this is hitting me so hard and I cannot explain my reasoning for being so depressed about the whole thing. I cry every time I walk out of the room. Due to the swelling, they have stopped her feeds and gone up on all her ventilator settings so that sucks. Now, all that being said, she has some good things happening. Her heart rhythm seems to be under control, she is completely off nitric oxide, and up to this point has been tolerating her feeds really well. I would probably be a lot happier about all the other stuff if I could get my mind off the swelling.
So on to other stuff. Many of you may have read Shane's recent post about his job change. This has been a really good thing for him and the rest of our family. He is working hard but much more relaxed overall and much more available for helping me through all this mess. I love him to death and am so thankful for his constant support. So as a result of all of the complications with Avery, we are in the process of moving so that we can be closer to the hospital. This is a huge undertaking and I am having a hard time working through all the details. First things first, we have got to either sell or rent our home in Fayetteville. Then we need to find a house to rent around here somewhere. So I just want to make a note here (for all you who know me well), that I AM ASKING FOR HELP!! If any of you know of someone who would be interested in renting or buying our house, please contact me either through a comment or email. If anyone knows of an appraiser who could appraise our house, that would be good. Eventually we will need help packing, cleaning, and moving so I will keep you posted on that. If any of you have connections in the Maumelle or Conway area as far as rental homes are concerned, let me know. So far, we have gotten a huge outpouring of help and I although I can't tell you all exactly what we need right now, I can give you an idea that these are some of the things we are dealing with. I don't have an exact timeline for all this stuff, but it would be nice to get the house stuff taken care of ASAP.
Please know that we so appreciate all that everyone is doing for us. We realize that we will never be able to thank you enough and hope to pay it all forward someday. Please please pray that Avery will get over this issue with her swelling...her kidneys are being asked to work much harder than they should so shout out some words of encouragement for them.
Carissa
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Carrissa, i will get on the horn with my ffo folks in fayetville to see if any one is in the market. praying for yall every day. love amanda
ReplyDeletePraying for Avery and your family!
ReplyDeleteCarrissa,
ReplyDeleteLizz linked me to your blog and we have been following for quite some time. Thank you for sharing with us. As I read this last entry, I was so touched. What you have gone through in the past 6 weeks is more than most people in a lifetime.
Please know that there are a lot of people pulling and praying for you and your family.
We all want the best for you.
May God Bless you and Comfort you during this difficult time.
Will be praying for Avery's kidneys and for all the move stuff. Love you guys.
ReplyDeleteDon't give up hope Avery is a fighter.
ReplyDeletePraying for your family.
Avery will work one thing out at a time. Keep on praying and ask for help. He will listen to you. I believe in miracles. Keep taking deep breaths and you will get through this.
ReplyDeleteEvan's nonna Jo
Praying for Avery and the entire family! Continue fighting sweet Avery!!
ReplyDeleteThinking of you, Tracy
praying for your little Avery...these little ones are miracles from day one...she is no different :). She's made it through so much so keep those positive vibes goin her way. She is lucky to have such amazing parents :)
ReplyDeletepraying & ready to help.
ReplyDeleteMatt & Ginny Mooney
still here. still praying. wish there was more from our neck of the woods in houston, but we are praying either way. Praying for your heart to be covered and strengthened in courage! Praying for those kidneys to do what they are supposed to with no added stress...and for the doctors to discern exactly what is up and for a quick recovery and healing. lots of love from strangers...but one in the Lord.
ReplyDeleteWhatever I can do from all the way out here, I will. Stay strong! Avery is!
ReplyDeleteStay strong guys! I am praying for Avery and the whole family. I will be very happy to help you guys out while you are moving. I will gladly pack, scrub floors, or whatever you need. Put me to work! Just give me a call when you need me. Love you guys.
ReplyDeleteHeather mooney
you are doing amazing and my prayers are with you and your family everyday.
ReplyDeleteBack home and ready to help. Just let us know what you need. Love You bunches...
ReplyDeleteWill pray really hard for Avery! Hope that the swelling comes down fast. The lil gal is such a fighter and I have high hopes for her. All my good vibes are for her--all the way from Maryland. May God give you guys the strength you guys need to go on. Will pray that everything fall in place for you all. Believe in miracles--just look at Ms. Avery!
ReplyDeleteHey- My friend Justin is now in the realestate business in Maumelle and surrounding areas. Im sure he might now about places for rent or to buy. Let me know if you want me to ask him.
ReplyDeleteRachael
Just wanted to let you know, I live in Conway and have two realtors that I know very well, who might be able to help you find a house to rent. There is also a house in my neighborhood available to rent. Let me know if you'd like their names or the number on the house or any info. at all.
ReplyDelete