Early this morning, Dr. Seib called to let us know that there was a cancellation in the cath lab and they could probably get Avery in today. It may not be for a few more hours but we will see. I will update when they take her to the cath lab. There are some risks involved in moving her and the procedure itself, but they are minimal. If they do not find anything that is related to Avery's swelling, there may not be a whole lot more to be done for her. Shane and I will have to make the extremely difficult decision to continue on with her care, or let her go. We are both pretty nervous and extremely scared right now. On top of all of this, we found out that the "cancellation" in the cath lab today was probably because another sweet baby boy in the CVICU who supposed to go to the cath lab today passed away. We are heartbroken for this family. They have been here about as long as we have and they are distraught over the loss of sweet Dalton. Please pray for this family and Avery today. There have been a handful of children who have passed away in the last few days so the whole unit is pretty down.
We are in desperate need of peace right now. My heart is racing and I am having a hard time wrapping my mind around all that has happened over the past few months.
Carissa
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Praying!
ReplyDeleteDear Carissa,
ReplyDeleteI just read your post and I am praying for Avery, you and Dalton's family. I know this doesn't help much, but Avery is in God's hands and his plan for her is already set. Take comfort in knowing that he will take care of you, Shane, Kaitlyn and Avery.
Love,
Danette Grantz in Colorado Springs
just had this emailed to me and thought it might offer some hope:
ReplyDelete"it hurts like crazy but the Lord knows exactly what He's doing, and He's sure not going anywhere in the midst of it."
neither am i.
c.
Prayers for Avery, your family and sweet Dalton's family!
ReplyDeleteGod will make a way where there seems to be no way. With God all things are possible. Be joyful always, pray continually, give thanks in all circumstances... May God give you the desire of your heart and make all your plans succeed. God Bless you so good Avery Mae, I love you and I ask God for complete drastic healing for you! In Christ's name, AMEN!
ReplyDeletePlease know that we are all praying for healing for baby Avery. Only God knows the plan that he has for your family. I hope that you find peace and comfort in his love for you all. We are here if you need us.
ReplyDeleteLove DeLynn
Praying for sweet ^angel^ Dalton and saying prayers of strength and "kicking-butt" for Avery. Saying some strength, peace and comfort prayers for you and Shane. Stay strong!
ReplyDeleteJean
All my love to both of you, Kaitly and Ave. All you can do is just "be". I'm sure that feels terrible, but at the same time, maybe it can be comforting. I hope you can find a glimmer or peace in knowing there is a greater plan. At this point, all you can do is continue to love her as much as you clearly do. Thats all anyone would expect.
ReplyDeleterachael
My heart is filled with pain for you and Shane. I will continue to pray for you both and for Avery. She has so much love and encouragement around her. Please keep us posted and never stop believing in her.
ReplyDeleteI'll be praying for Dalton's family...bless their hearts. And as always, I am praying for you guys and little AMK. I know this is so hard. I just wish I could make it even a tiny bit better. If you want us there, just say the word.
ReplyDeleteLove you!!!!
Praying, praying, praying. xoxo, Annemarie
ReplyDeletePraying for sweet Avery and Dalton's family.
ReplyDeleteWill continue to pray for Ms. Avery. Will pray for sweet angel Dalton and family. May God give them comfort during this time.
ReplyDeleteWishing you peace Carissa. Praying for Avery and Dalton's family. Hope and peace to you all. Holli
ReplyDeletePraying for His grace and strength for you my sweet girl, but most of all for peace for whatever comes - we know there are no perfect outcomes, only perfect faith. We love you angel and your family and we continue to pray for your little miracle Avery.
ReplyDeletePraying for you baby Avery! And your family too!
ReplyDeleteI am praying.
ReplyDeleteAbsolutely praying without ceasing.
ReplyDeleteMany, many, many prayers being said for all of you!
ReplyDeletePraying for Avery and all of you and Dalton's family too ... that God will bless you with peace, strength and wisdom.
ReplyDeleteRobin Gaspard Cosenza
Praying hard for you sweet baby Avery and family and Dalton's family too...
ReplyDeleteDai
You are always in our thoughts... praying for sweet Avery and for Dalton's family. Peace is a hard thing to find during this journey but I pray that God wraps his arms around you all and holds you tight.
ReplyDeleteAshley
I stumbled across your blog a few months ago, and check back daily to follow your family's journey. I have never posted before, but wanted, today, to send you all my good thoughts and prayers. I am praying for strength and peace for your precious Avery and your whole family.
ReplyDeleteMichelle - halifax, nova scotia
Love Dr. Seib. We will be praying for Dalton's family and the unit. Those nurses and doctors truly are sent by God and need our prayers as well. Praying for peace and comfort that only God can supply.
ReplyDeleteJust take a moment to be still, your family has been on a rollrcoaster! Each step is a lengthy journey! Every baby is so precious, God's angels, their loss...so painful! These little souls have endured so much,but are so loved. Try and be in the moment. We pray for many quiet moments for your family; just try and be. Hugs Kathy Rae
ReplyDeleteWe will be praying for sweet Avery and Dalton's family!
ReplyDelete