Just to give all the waiting eyes an update, Avery continues to remain stable and quiet. The team taking care of her has had to actually increase her medication in order to keep her still and quiet. Apparently she really wants to get off her back and wiggle! The team is continuing to ween the ECMO circuit and turn up the ventilator. So far, Avery is tolerating this well. I spoke briefly with one of the surgeons who operated on Avery's hernia...he seemed very pleased with her progression and seemed optimistic about getting her off of ECMO. I hang on every word they say and today he said, "WHEN she gets off of ECMO" rather than "IF she gets off of ECMO". All in all, we are taking each day slowly and trying to let our little girl rest. It is so hard...all I want to do is kiss her and pick her up...hopefully soon.
We enjoyed visits from dear friends and family today. The love and support we have received continues to carry us to the next day...thank you friends. Kaitlyn is back with us for a couple days...I am so happy to see her. I am so torn between my two girls. KK is thrilled to see us and her sister. It's so fun!
Our time in Little Rock continues to be full of blessings...especially the house that we are staying in...thank you Pulaski Heights Baptist Church! I expect that in the next couple days we will continue to ween the ECMO circuit and keep take each day slowly. We will continue to pass on information as it comes!
Carissa
Praise God for Pulaski Heights. What a blessing it must be to have a "home" to stay in during this time.
ReplyDeleteI love the picture of Avery peaking out. God has big plans for this precious little one.
A waiting eye - Heidi
Oh, seeing her eyes was the best!
ReplyDeleteKK looks like such a proud big sister. (And she is looking more and more like you, I might add.)
Praise God for all the blessings. I'm so glad you have a place to stay that is close to a home.
Thanks for the update. Like Heidi, I'm a waiting eye.
Oh, and who do you think she takes after that she wants to be on the move already? Hmmmm. That's a tough question. Hee hee.
Continued prayers for Miss Avery! Keep showing them what you are made of!
ReplyDeletewhat a sweet little girl peeking out!!! Just like her mom ready to go go go!!! Pictures today are the best!!! I am so happy to see a picture of KK!! miss you guys and hope to see you soon!!
ReplyDeleteLove Jamie Golab
Praying Avery keeps having quiet and good days. I love the picture with her peeking at you...too sweet. Keep fighting Avery and doing well with getting off of ECMO!! You can tell that Kaitlyn is a very proud big sister. I am definitely one of your waiting eyes and wondering how your little girl is doing, she is just precious.
ReplyDeleteHugs, Tracy - Ian's mom
Love to you all... So glad Kaitlyn is with you all for a few days. Praying for you all...
ReplyDeletePat and Holli
I would be haning onto every word too, and the fact that he said "when" is such a blessing. Love the pictures of her. She's just precious.
ReplyDeleteStill praying,
Stephanie
loving you - wish I could be there in person - still asking Him to envelope you in His grace of patience and peace for all that has happened and what's to come. You guys are so blessed - TWO such beautiful, precious little girls!
ReplyDeleteHi! My son was in your mom's class 2 years in a row and absolutely loves her. I have been following little Avery's progress. I had a baby at 29 weeks and he was born very healthy, it was quite a journey for us so I know just a little bit about what you are going through. I pray that Avery continues to get stronger. I will pray for Charlotte and your whole family. Take care.
ReplyDeleteLove,
Danette and Will Grantz in Colorado Springs