Just to give all the waiting eyes an update, Avery continues to remain stable and quiet. The team taking care of her has had to actually increase her medication in order to keep her still and quiet. Apparently she really wants to get off her back and wiggle! The team is continuing to ween the ECMO circuit and turn up the ventilator. So far, Avery is tolerating this well. I spoke briefly with one of the surgeons who operated on Avery's hernia...he seemed very pleased with her progression and seemed optimistic about getting her off of ECMO. I hang on every word they say and today he said, "WHEN she gets off of ECMO" rather than "IF she gets off of ECMO". All in all, we are taking each day slowly and trying to let our little girl rest. It is so hard...all I want to do is kiss her and pick her up...hopefully soon.
We enjoyed visits from dear friends and family today. The love and support we have received continues to carry us to the next day...thank you friends. Kaitlyn is back with us for a couple days...I am so happy to see her. I am so torn between my two girls. KK is thrilled to see us and her sister. It's so fun!
Our time in Little Rock continues to be full of blessings...especially the house that we are staying in...thank you Pulaski Heights Baptist Church! I expect that in the next couple days we will continue to ween the ECMO circuit and keep take each day slowly. We will continue to pass on information as it comes!