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Although we are thrilled to share our lives with all of you, the primary reason for this blog is to keep friends and famliy updated on our experience with our daughter who passed away as a result of complications from her prenatal diagnosis of Congenital Diaphragmatic Hernia (CDH) and a heart defect known as Double Outlet Right Ventricle (DORV). Avery Mae Keirsey was born May 12, 2009 and died July 14, 2009.
What a strong brave girl, just like her Mommy! Such a sweet video. Shane I really see that Avery looks like you! So cute!
ReplyDeleteShe is so sweet! Thanks for sharing.
ReplyDeleteshe knows you're there with her and we know He is there with all of you. Still praying - hugs to your families too.
ReplyDeleteI lifted a prayer for you and your family. The NICU experience is something I wouldn't wish for anyone. My daughter was in the NICU for 40 days because she was born 3 months early. Your daughter is a fighter and she has prayer warriors on her behalf.
ReplyDeleteI came across you blog because my cousin Jessica has it on her facebook account to visit, so I thought I would leave a note of encouragement. My daughter had open heart surgery a little over a year ago now, and with the help of the amazing doctors and nurses we had helping us she is an amazing addition to our family! The verses that I took as my comfort during our time of heartache was John9:1-5 We may not understand what is going on but all things will workout if we trust in Christ. the blog we have for our family is youmekiddosfamily.blogspot.com
ReplyDeleteAlways Faithful,
Jed SMith
What a special video to share with everyone who is praying for all of you! Kamryn Hope, my granddaugher, is due in the weeks to come, and seeing this video truly helps me prepare for the journey ahead of us. Avery is a fighter...and I am sure that she knows that you are with her. Thank you for taking time to help us understand better the path that all CDH babies must take. Our family will continue to pray for Avery and your entire family. God Bless. Kamryn's Gammy
ReplyDeleteThinking of you every day! Love from Florida!
ReplyDeleteHi, Keirsey family,
ReplyDeleteYou don't know me from Adam; I somehow linked to your blog from another I was reading. However, I wanted you to know that I have read some of your story and my heart goes out to you. I worked in the NICU as an RN up until a couple years ago, and I know the pain and strain you are going through with your precious baby on ECMO. Hang in there, know that there are people you don't even know who are praying for you and your little girl. It's a tough struggle but one she can certainly overcome. Remember to take care of yourselves through all of this, especially each other. During such a stressful time, you need to keep yourselves, and your love for each other strong. Best of luck,
Jennifer
I found you through some of the other CDH baby blogs. Know that you are in my prayers daily! Praying for your sweet little Avery to get stronger and stronger. May God Bless you and your whole family!! Hang in there!! God is Good!!
ReplyDeleteSissy
Nashvile, TN
We're friends of Matt and Beth's and we just wanted you to know that you guys are in our prayers! Sweet little Avery is just beautiful! We will just keep praying and praying for healing!
ReplyDeleteLeigh Evans
Springdale, AR
What a sweet sweet video. Thank you so much for sharing. I know she can feel you and hear you! God be with you all!!!
ReplyDeleteLove, Stephanie
Tubes or no tubes, she is just absolutely beautiful.
ReplyDelete