In December, when we learned of Avery's condition, I began to search the Internet for other people's stories in regards to CDH. When I started this blog, I was overwhelmed by the "CDH Family" that exists in cyberspace. There are many many families that are dealing with this condition, and although many of us have never met in person, we have bonded. We all check up on each other and keep up with the successes and challenges that each CDH baby brings. In the months that I have been blogging about Avery, two babies have been born with CDH, Maxton and Kaden. We are deeply saddened that both of these little boys did not survive. They fought for weeks and were brave troopers, but their little bodies were just not strong enough.
Please keep these families in your thoughts and prayers. I can imagine that there is nothing more painful than the loss of a child. I cry for their pain and I selfishly cry for myself because I don't want to lose my child.
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Carissa, you are so sweet. I have every faith that your beautiful child will be one of the ones who makes it. ( i never really felt that way about my own... a mothers hunch i guess)I know that it is hard to read of other babies passing while waiting for yours to arrive, but just have faith! also, little girls seem to do better with CDH. Not sure why that is, but it is true. Much love and many prayers
ReplyDeleteAshley
You're sweet to mention these families in the midst of your own storm. I know they appreciate it. You're a great person, Carissa, and I'm honored to call you my friend.
ReplyDeleteAs always, you, Shane, Kaitlyn and Sweet Avery are in my thoughts and prayers. Anything I can do...you know I'm here.
Carrisa,
ReplyDeleteI couldn't say it any better than Bethany did. I am constantly in awe of the families who see beyond their own stories to reach out to others. You are an amazing person and I am here if you need anything.
We'll be keeping your family in our prayers. Did you know there was a CDH baby born 3 years ago named Avery Mae?
Carissa, like you while waiting for my sweet Oakley to arrive. I followed many different blogs that were due around the same time as Oakley. I found Nayails blog and she gave me so much hope for Oakley. There are so many that don't survive CDH but you have to find hope and believe with faith that your AVERY is going to be one of the MIRACLES that do survive. Oakley became one of those miracles and I believe that Avery will be also.
ReplyDeletePrayers for you and your little Avery.
Oh honey, every time we talk, every time I see pictures and each time I read one of your posts, I am reminded of why you (and your family) are so precious to me - it is a privilege to be your friend. He is holding Avery close, you and Shane continue to pray and be hopeful and kiss my sweet Katie for me.
ReplyDeleteWe are all praying here.
When I was pregnant with Claire and found out she had CDH I spent hours each day reading the blogs of other CDH kids and bawling. Two years later and she is fine and I still read the blogs and cry for the babies who don't make it. Hang in there, I know this waiting game is so hard because you don't know the outcome and are so worried. Miracles do happen though.
ReplyDeleteYou are so amazing! I follow your blog every week and you just amaze me, so giving. My thoughts are with you and your family!
ReplyDeleteWith love,
Julie
As many of the others mentioned, you are amazing and I'm honored to call you my friend. I'm still praying and hoping for a miracle. I'll be praying for these other families as well.
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