It has been a pretty quiet weekend for Miss Avery. She continues to rest and gain strength. She has tolerated the removal of the spacers near her heart and also tolerated the weening of the blood pressure meds. On Monday, Dr. Dassinger (doc who performed her hernia repair) is planning on closing the incision in her belly that has been allowing for her belly to heal. I am guessing that after that happens, we will have another couple days were the team lets her rest. We never know how Avery is going to respond to the slight changes that are made.
If all goes well, I am thinking that I may try to make a quick trip to Fayetteville to do a couple of things. I will probably stay one night up there and then return to Little Rock. I have an appointment with my OB next week so that he can check on how I am healing. I am feeling pretty good...a little better each day. I am hoping he will say I can start exercising!!!
At this point, I have mixed feelings about everything. It is hard to explain. I am so thankful that Avery has overcome all that she has, but there is some serious fear about what is to come. In the back of my head, I know that at any moment she could be again fighting for her life. There is never really room to truly relax and go "ok, we are going to bring her home". I am so scared to get my hopes up. I don't want to be disappointed, but at the same time, I want to celebrate and cherish the good days. It's the most awkward emotional place to be.
We continue to be blessed with fabulous people around us and we are grateful for all the love and compassion. The road ahead of us is going to be full of ups and downs and we are preparing ourselves for the unknown. I posted this quote from another friend's blog and I still feel a deep connection to these words:
“Concretely, abandonment to the will of God consists of finding HIS
purpose for you in all the people, events, and circumstances you
encounter. If God tears up your beautiful game plan and leads you
into a valley instead of onto a mountaintop, it is because He wants
you to discover HIS plan, which is more beautiful than anything you
or I could have dreamed up. The response of trust is “Thank you,
Jesus,” even if it is said through clenched teeth.”
Love to all-Carissa
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Always praying for little miss avery and your family.
ReplyDeleteapril
Huntsville, AR
Yes, as the quote says, God has his plan in all your lives, and it is and will be more beautiful than you can comprehend at this time. We are still with you in thought and prayer and continually think of sweet baby Avery. Carissa, may your body be healed as well so you can continue to carry the load you have. May God bless you all. Goldie McGarrah
ReplyDeleteI love the quote at the end of this blog entry. I know this is such an up and down rollercoaster of a ride. You're doing so awesome though, and you should be proud of your strength that you have held.
ReplyDeleteOur CDH journey starts in 10 days or less if they decide to come early. Thinking of you and praying hard that Avery is going to keep up the good fight.
With love,
Stephanie
The quote is amazing. When in the valley, it is hard to believe that God's will is best. That is when we have to pray for faith to get us through our unbelief.
ReplyDeleteI understand how you feel. When Brayden was so sick, I was very scared to think about the future or dream about bringing him home. It's a tough situation to be in and I'm praying for you all!
ReplyDeleteCarrisa and Shane,
ReplyDeleteI read your blog almost every day and pray for Avery. I understand your mixed emotions. When Bethany was going through what you are going through, I was so amazed and proud of her. She had so much strength. I would ask her how she could be so strong and she would say," Mom, I don't have any choice, I have to be strong for Jack." As a mother, I hurt so much for her and the suffering she went through, but I am still so proud of her and how much she grew through the experience she had with Jack. You two sound like you have strength and faith that God will get you through this time. You are in my thoughts and prayers.
Bethany's Mom (Jack's grandmother),
Theresa Driver
I totally understand your mixed emotions. My newborn son was in the NICU recently and I felt exactly the same way. When she's ready to go home, you'll be ready and those feelings will be long gone. They won't let you take her home until you're ALL ready! Trust me - when we were ready to be discharged, I'm pretty sure we left skid marks in the NICU hallways!! I'm keeping you all in my prayers!
ReplyDelete:) Wendy in Ohio
I was asked to pray for your family from another Kelly's Korner. I started following you on the 30th of May. And I saved your blog to my favorite list on the 31st. Everyday I have checked back in it was on the 31st day post. I have been sick with worry till today when I fixed the problem and saw that she was doing so well. Praise God!!!
ReplyDeleteShe is beautiful. I love the verse you had on this post, it is so true.
Prayers for your family in Alabama.
Bj
Hope and Faith will get you throught this Carissa. Sending you prayers everyday and hoping Avery has the strength to overcome! Love to you all... Pat and Holli
ReplyDeleteThat is an amazing quote. You have no idea how blessed I am to call you my friend. You are never far from our thoughts. We pray all day for you. My kids have started praying something like this before our meals, "Thank you for our food and please help Baby Avery." We love you all.
ReplyDeletehoping for a smooth week..and maybe some new pics? :)
ReplyDeleteRachael
Sounds like you've got a fighter on your hands! I am so glad to hear she seems to be doing so well right now. I will continue to pray for God's will and the comfort of Avery and your family.
ReplyDeleteI think about your sweet girl often and continue to praise God for these wonderful days. Will continue to pray for Avery "The Champ"! Hope all goes well today and Avery tolerates this small change. Strength, patience, and above all TRUST in him!
ReplyDeletePraying for a good and stable week and Avery handles all the changes. Stay strong Miss Avery!!
ReplyDeleteMuch love, Tracy
I am a friend of Bethany's and keep up with your blog. I continue to pray for Miss Avery & for the two of you. I admire your strength and just wanted you to know that you are thought of and cared for even by strangers! I know you have so much support, but if there is ever anything I could do ... I live in Little Rock! God Bless!
ReplyDeleteDear Lord I ask that you continue to hold Avery in your strong arms today and guide all those in contact with her so that Your will be done. We praise You for getting her this far and have faith that you are strengthening her as a part of Your ultimate plan for her and the Keirsey family. Please give this family peace that passes all understanding as they deal with each step of Your plan. In Jesus' name we ask all things.
ReplyDeleteI cannot imagine the feelings and emotions that you guys go through on a daily basis. I just want you to know that you are in my thoughts and prayers every single day and night!!!
ReplyDeleteGod is GOOD and will do what he knows is best.
Keep your chins up!
I just found your blog through Kamryn's... I will be praying for your little Ava! My son was a right sided CDH baby & is now 2 1/2.
ReplyDeleteJeremiah 29:11
Thinking of you all right now and praying.
ReplyDelete