Readjusting

Well Avery has made it almost to the 24 hour mark of her partial closure. Yesterday she was pretty up and down. Her stats were way lower than they had been prior to the closure. It was pretty scary and I was uneasy all day. I actually slept pretty well and feel rested. This morning, the docs decided to raise her meds just a little bit more and she seems to have responded well to that. Now, they will watch her and hope that she can keep her numbers up as they ween back down on medications. Later this week they may close the remainder of her chest and we are back to readjusting again. It is such a long slow process.

We are supposed to meet with a bunch of doctors sometime this week to discuss Avery's big picture. Although it is easier to break up her two conditions, it is sometimes helpful to get an idea of where she is as a whole. I will let you all know what we find out.

As for me, I walked/ran for the first time yesterday and it felt SOOOOO good. I am not as sore as I thought I would be so I guess I better step it up a notch! I miss Kaitlyn desperately. It is so hard to be away from her. Actually I hate it!!! My mom is leaving today so that is going to be really hard for me to get used too. She has been such a fabulous help and support and I will miss her dearly. Hopefully she will be able to come back again.

Anyways, thanks for all your comments. They keep us going!

Carissa