Wow, what a couple of days! We are now just about at the 24 hour mark without ecmo. We are so proud of our little angel warrior. Dr. Moss said a few minutes ago that Avery is holding her own and the goal today was to "Let her be". She is peeing ok and her blood pressure is borderline. The blood flow to her head is a little on the low side but nothing to get excited about. They are also trying creative ways to get her co2 levels down. Her oxygen levels are actually good enough to ween off of the ventilator a bit. All in all she is kicking a little butt considering she just had open heart surgery 5 days ago! We love her very much and still believe in miracles. Thanks everyone for the extra prayers because God is good...and he is listening!-Shane,Carissa,Kaitlyn and Baby Ave!!
So glad things are going well (or quietly) right now. Avery is clearly strong--just like her sister!! Love you guys! Hang in there!
ReplyDeleteKeep up the good work, Avery girl! I had to wipe the tears from my eyes to type this time. Happy tears!
ReplyDeleteGlad things are getting better. Hope you can all come home soon! We miss our summer buddies :(
ReplyDeletepraying for you guys! what a sweet little baby you have....and strong i might add.
ReplyDeleteLove Candice
Amazing news! Baby girl is a fighter, look out world!
ReplyDeleteKristin
Kaitlyn in scrubs!
ReplyDeleteI am so happy to see you updates today. You sure have one tough little girl. You are all amazing. I continue to pray for her healing.
ReplyDeleteIOWA
So happy to see you all. Still praying for Avery Mae and all the family. Sadie sends her love... Pat, Holli, and The Boys...
ReplyDeletethey gave Max a bicarb drip to help with his co2 level. the doctor told us it likely "wouldn't help". Not sure if that is really what helped or not, but I know his co2 level was fine after that. Hoping little Avery continues to hold her own! She is amazing...
ReplyDeleteWe praise God for the wonderful news! Keep it up Avery!!
ReplyDeleteSoooooo glad for a good day for you guys!!! I love the cupcakes!! The picture of Kaitlyn is priceless and I LOVE the picture of the four of you.
ReplyDeleteI have faith that good things are to come and I love you all very much!!! XOXO!!!
So proud of what Avery has done in 3 weeks!!! She is a precious gift from God and one strong princess warrior for sure. Praying for many more good and quite days and Avery keeps holding her own. Love the pictures.
ReplyDeleteKeep going strong Avery!!!
Much Love, Tracy - Ian's mom
WOW! Miracles do happen! The room is darkest just before the window opens! Take a big breath, build your strength for the next bump in the road! Your wee girl is doing a great job of "rallying", she is a tough cookie! She has a place in this world, a purpose only God knows. Sure is wonderful watching her kick baby butt! Must say your family pic is the best I have seen in awhile! What fun Kaitlin must have had at the party and many more to come! Prayers Kathy Rae
ReplyDeleteyay! and still we pray :)
ReplyDeleteWe are praying from Tamaulipas Mexico. God is good
ReplyDeleteBless Avery's little heart. Prayers for her and for you all are continuing here in California. Take a deep breath now and then and God will continue to give you strength and peace. I believe in miracles too, no matter how much time they may take:)
ReplyDeleteLove and Hugs, Laurie
I am in tears reading this post! God is SO GOOD! We are keeping y'all in our prayers daily and if there is anything we can do please let us know.
ReplyDeleteMuch love and prayers for you all and especially for the soilder Avery from Maryland. She is doing great! I really want you to know that strangers like me are totally in love with that cute girl of yours and praying hard for her to get better and be home soon! It had been a good day, so stay positive and rest up a little.
ReplyDeletePriceless picture of your sweet family, and Kaitlyn holding her baby sisters hand... love it. From a stranger who is also praying hard for your baby girl and family - and who checks your blog multiple times a day to see how Avery is doing...
ReplyDeleteSo thankful to see happy pictures on here tonight!
ReplyDeleteSo glad to hear baby Avery is doing well! As a mom of 3 wonderful children it really makes me realize how lucky I am to have them healthy! I couldn't imagine having to go through what you go through every day and It makes me be a better mommy realizing how lucky I am. I pray for you and your family every day! I can't go to sleep at night until I check and make sure you guys are all doing well! Lots of love and prayers!
ReplyDeleteGo Avery Go!!!
ReplyDeleteAs I sit here tonight, just finishing celebrating my baby's 3rd birthday, I pray, pray, pray for your beautiful little girl. Continue to praise God- for he is good.
ReplyDeleteGod is listening! I am so happy things are looking better. You guys are amazing parents to two beautiful girls!! Remember we are here whenever you need us, just a phone call away...
ReplyDeleteWendy, Vince, Ben and Grant
So glad to hear that she is doing good....Enjoyed reading your blog today..still finding my way around blogland....I always love making new friends..I am posting about Disney so hope you will stop by. Commenting automatically puts you in the drawing for the June giveaway.
ReplyDeleteWe are so happy to hear that Avery is doing well off Ecmo. She is one tough cookie! Well done little one, keep the good news coming.
ReplyDeleteKeep fighting baby Avery! You've got lots of fans awaiting to hear nothing but good news on your health in the future. I will keep up the prayers.
ReplyDeleteStill PRAYING!!!! Thank you God!! Way to go Avery!
ReplyDeleteThe Good Lord does answer prayers! You guys are amazing (all four of you)!! Always in my prayers....All my love...
ReplyDeleteShannon R.
What awesome pictures!
ReplyDeleteWay to go, Avery!
Fight Avery Fight!!!! You can beat this!
ReplyDeleteLove the pictures too. Keep 'em comin'. We are sending you love and prayers.
Love,
Stephanie