5.31.2009

Long night...


We were not at home long and received an emergency call from Dr. Garcia. She said that Avery was really sick and to come as fast as possible. When we arrived DR. Jaquis and the team were putting Avery back on Ecmo. We were dazed and confused. Dr. Garcia brought us into a room and said they could not help her blood pressure and had administered every type of drug to help her vitals...but her poor little body had taken too much of a beating from the heart surgery. We had to make a decision about Ecmo and how many more days of drugs we would pump into her. We cried and told ourselves that she had suffered enough and to let God lead us to the next step. Since they had already started the cannula's into the heart they proceeded and we discussed everything and called friends and family. Kaitlyn was fast asleep and a good friend was with her at the house.The thought of telling her about Avery broke our heart. The next half hour felt like days and many emotions ran through us.The team finished the Ecmo circuit and we spoke with Dr. Jaquis as they cleaned Avery up. His plan was to let Avery rest on Ecmo and hopefully she would not have a stroke or any brain bleeds. He repeated what he told us back in February, before we would really know how painful this all would be, that he never wanted to do something TO our child, but rather FOR our child. And now I wait in the family room after sending Carissa and the grandmas home to rest. This next 24 to 48 hours will lay out His plan for our precious little girl, the sweet name that everyone knows on this floor, Avery Mae Keirsey. Please pray for her to be at peace, no matter what the outcome.-Shane

16 comments:

  1. i can understang ur feelings ,but trust me ,god will bless everyone

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  2. to be strong ,i will pray for you

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  3. I have you in my thoughts and wish all of you the very best.

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  4. AnonymousMay 31, 2009

    Thinking of you all and praying for sweet Avery Mae

    Jo

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  5. AnonymousMay 31, 2009

    Praying for that sweet baby, and your family...

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  6. Praying for peace for Avery and her sweet family.

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  7. Wishing I had the perfect words...but since I don't. Know we are sending our love your way.

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  8. AnonymousMay 31, 2009

    As I read your account of the last few hours, my heart aches for you. The road you are traveling is one of pain and sorrow, seemingly with no end in sight. Your baby has been through so much in her short life, hardly seems fair. Take the next few hours, gain perspectve, so you can make good decisions for her. God holds her in his palm, and has plans for her greater than we can ever know! She has the most beautiful eyes and a fighting spirit. The next hours and days she will let you know the path she will follow, with God leading the way. Miracles do happen, sometimes we need to stand back and watch them unfold, that is the hard part! We will continue to pray for God's direction for your darling baby, and for strength for her family! Your hearts are broken, and each moment shatters you more. Walk slowly and with purpose. No regrets. Sending lots of HUGS, TEARS and most of all PRAYERS. Kathy Rae & family.

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  9. AnonymousMay 31, 2009

    Holding you all tight in our thoughts and prayers. God be with you... Pat and Holli

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  10. Praying for Avery Mae and all of you.

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  11. I am devistated for you to read these words this morning. I am praying that God will give Avery and you and your family strength, which ever His will might be.

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  12. I pray that God clearly lays out his plan for Avery and gives you a good clear sign as to what his will is. I pray for stength for you both to accept it if it is not what you had hoped for. I pray for little Avery and for Kaitlyn. You guys are so honest with your blog. I am crying because I remember being exactly where you are. God let us know when it was time but my prayer for you is that God turns things back around to steps forward. Much love and many prayers!
    Ashley

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  13. Don't know you, but read your blog everyday. The updates have made me want to come through the screen and give you all the biggest hug. Just know that a complete stranger and her husband and son are thinking of you from a children's hospital in Tampa Florida. We understand the pain of not knowing what the future holds but are so blessed to know we got to experience what we have so far. Love to you and your family! Jessica, Adam and Evan Wolin

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  14. AnonymousMay 31, 2009

    It is so hard for us to see you guys go through this. Please know that we are sending all of our love and support and wish we could be there for you. You are in our prayers. We love you - Brad, Kelli, Madelyn, & Hayden

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  15. She is beautiful! I love seeing her eyes. Praying for peace and God's plan to be clear. Constantly thinking of you all.

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