Doing Better

As of this morning, Avery is better. Her belly is softer and not bleeding as much. She is still peeing good which suggests her kidney function is good. The plan as of today is to start to ween her ECMO and do a trial off tomorrow sometime. When we left this morning she was responding well to a breathing treatment that will hopefully help her lungs expand. The team caring for Avery continues to stay positive and focused on getting our little girl stronger.

All of this is so hour to hour and day to day. Everything changes in an instant and we are all riding the waves.



  1. Thanks a million for the update! I've been checking often. Avery is so strong and all I hope for is for her to get better soon so that she can go home and enjoy life with you all.

    Go Avery - keep on doing what you are doing sweet baby girl

  2. keep working hard sweet baby girl...mom, dad, big sis, Mimi, Pops, Ryan and all the rest of you - stay strong. We're thankful for the updates and we're holding you up in prayer. Love you all :)

  3. Glad you are having a better day today. Love you guys!!

  4. Glad to read you are having a better day. We are praying for Avery and the strength needed for her to come off of ECMO. Have a good strong day Avery!!

    Hugs and much love, Tracy - Ian's mom

  5. What a strong little girl that you have. You are not riding the waves alone. I hope that you feel us surrounding you with love on this ride.

  6. Nicole from Rosemead, CAMay 29, 2009

    Please know that your family are in my thoughts and prayers. Thank you for updating us. I go to your blog at least three to four times a day. I was worried about yesterday because there were no updates. I am glad Avery is doing better today. All you can do is take one day at a time. Blessings to you and your family from someone you don't know but someone who cares about your little girl Avery.

  7. Prayers still being sent from Nashville, TN. Was so glad to hear your little Avery is doing better. I check you blog daily and in fact a few times a day with others I am checking in on too!! Praying for you all!! May God Bless!


  8. lots of love from the PacificNorthwest, little Avery! we are praying hard for you!

  9. So glad it's been a better day. Thinking of you all constantly.

  10. I'm praying for miss Avery as well. My heart goes out to yall. I will be going thru this in July and i hope Avery is off of ecmo and on her way home by then.....


  11. Just came across your blog today, wanted to say I'm praying for little Avery and your family! She is precious.


  12. Just wanted to let you know that we are praying for Avery and your family. She is BEAUTIFUL!!

    God Bless
    Love Sheree

  13. hello, i happend upon your blog, id like to say my thoughts and prayer are with you and your beautiful daughter! i have a 19 month old son who was born 7 weeks early with CDH, i know your fear and worry. keep your prayers going, God hears them, he is with you! if you want an ear of a fellow CDH mom roses4me777@yahoo.com or our carepage for zach is www.carepages.com his page name is Zacharydavis, no spaces.
    God Bless,

  14. Love and prayers coming your way every day! Your strength is keeping Avery going. Thinking of you!


  15. I'm praying for your sweet Avery.