As promised, I am here with the detailed update...

As Carissa said, the surgery went well. Avery came through it like the champ that she is.

However, the news that Shane and Carissa got after the surgery was not as good as expected. Matter of fact, it was just the opposite.

Avery's stomach, intestines, spleen and part of her liver were in her chest cavity and were moved back down. The hole in her diaphragm was too large to be closed with the muscle, so they had to use a gortex patch. She has a pretty good some visible left lung, which is good. They didn't address her right lung at the time. They were unable to completely close her belly, so they placed a patch across the gap that will grow with her as she grows.

Avery's heart struggled quite a bit during the surgery. She went into SVT (which is, a technical term for a very rapid heart rate) during surgery and they had trouble getting it back to a normal level. Shane said that her heart beat got as high as 247 beats per minute. However, at last report it had gone down.

Avery is experiencing some swelling and oozing (bleeding), but those things are both to be expected after surgery.

Avery, Shane and Carissa need your prayers and love now more than ever. They were told this afternoon that Avery's chances of survival are very small. She has a lot of odds stacked against her.

But, we know that God is the only one that knows the plans for Avery's life. Plans that no doctor could possibly know. Avery is holding her own and no one is giving up, but as you can imagine the news was devastating.

The next 24-48 hours are expected to be rough for Avery, so please be in prayer for her. Please be in prayer for Shane and Carissa...for their strength and peace of mind.


  1. Dear Jesus, my heart breaks for this family. But I rest in the knowledge that You have all of the details worked out "for the good of those who love the Lord". We hang on to Your promises and ask for complete healing of Avery. Hold this precious family in Your loving, powerful, and strong arms. In Jesus' name...

  2. Hang in there guys. I know God has some special plans for this little girl, though we may not know what they may be. I pray that she pulls through and is a strong little trooper. I can't imagine what you might be going through. My heart goes out to you both and your families. You can bet that we're out here praying for that sweet little girl.

  3. WOW WHAT A ROUGH DAY! Awesome she made it through the surgery and is still fighting. The next hours are ones to be taken moment by moment. She needs all your love so she can draw on your strenth. Don't give up hope-anyone who has worked with these babies will tell you that some do well even when things look bleak. Remember she is a GIRL and that is a plus. In the hours to come there will be litle steps forward and ones back, lots of highs and lows. We send our prayers and MIRACLES do happen! Lots of love and many hugs. Kathy Rae

  4. I am sending many prayers for Avery. I know that she can be a miracle baby if that is God's plan! Shane and Carissa, I know how hard it is to simply not know his plan for sweet Avery but I have faith that she will indeed prove those doctors wrong!!! Many prayers and much love coming your way. May God give you and Avery strength!

  5. AnonymousMay 20, 2009

    Dear Jesus, Please watch over Avery and give her the strength she needs to fight this and live a long beautiful life! Carissa, my heart breaks for your family. Please know that there are so many people praying for you and you're family! Love you, Leanne

  6. Oh Lord, this is one of those times when there are no words other than your Words. Please comfort this precious family and give them the strength and peace they need in the hours and days ahead. Please perform a miracle and heal Avery quickly. I ask that she would beat every odd stacked against her and may her story become one that can only be attributed to You. In Jesus' Name...

  7. AnonymousMay 20, 2009

    Praying that your little angel keeps fighting! Sending man prayers your way!

  8. AnonymousMay 20, 2009

    Sending many prayers

  9. Shawn and I are lifting you all up in prayer tonight. She's a fighter. I know this has to be tough. We pray that y'all continue your strength to get through each passing day, as well as keep your faith in Him.

    Much love,

  10. Praying for Avery and the strength to get through the next few days. Cherish every single moment with your precious little girl, she is a fighter.

    Thinking of you - Tracy

  11. I am thinking about you and Shane and baby Avery so much! I cannot imagine how you feel or how you are so brave. She is such a little trooper and I hope she keeps on fighting. Hang in there, gang - I love you!

  12. Shane & Carissa-

    This is one of the firt post since Kaden lost his battle that I have made. I do check every day, and think about how hard it is to go thru. I was there--and know your scope of emotions. Just know that the doctors are NOT God, and they seem to always err on the side of caution. Avery CAN pull thru and do well. That is what I am asking God for tonight--that he will spare Avery and let her stay here with her family that loves and needs her so much. Please do not give up hope! Much love and support from CA!

    Kristi & Craig and Angel Baby Kaden :)

  13. AnonymousMay 20, 2009

    I am praying for you guys and that sweet little baby girl of yours right now. I just read your blog for the first time tonight..I am pregnant with a little boy that has been diagnosed with CDH and am due in July. Reading your last post has just broken my heart. I will pray so hard for yall 2nite.
    Candice Beal

  14. AnonymousMay 20, 2009

    by the way i couldn't add yall on my blog for some reason so if you would like to go to mine it is

  15. AnonymousMay 20, 2009

    I am sending all my love and prayers to you shane avery and kk. I love you so much!! Stay strong my friend! Jamie Golab

  16. I'm sending all my love and prayers to Avery! Stay strong Mom and Dad!

  17. Mommy of YaDaMay 21, 2009

    Believe in him - God is awesome. I had my 2 yr old son praying for Avery too. Lift your battle and put it in his hands. He works miracles and I strongly believe that Avery will pull through. It will be rough but just believe! Avery is a fighter and such a sweet angel. Praying that God will allow her to enjoy many more years. Praying all the way from Maryland - Mommy of YaDa

  18. AnonymousMay 21, 2009

    Stay strong. We at Pulaski Heights Baptist Church are all praying for you. God will draw you close to him and give you the courage that you need to get through this. Little Avery already knows what a wonderful family she has been born into. PHBC - LR

  19. judi barbaraMay 21, 2009

    He knows our very lives from the moment of creation. Still praying for Him to lift Avery up in His arms with a strong heart. Holding you all close dear friends. We are feeling your every emotion. We love you and we are here for you.

  20. AnonymousMay 21, 2009

    Praying for Baby Avery, Shane and Carissa - may God wrap His arms around you and fill you with His spirit. Stay strong - prayers are being said for all of you. God Bless -

  21. I am praying with all that I am and all that I have. Avery has been through so much already and I only have high hopes that she will recover 100%. With our Great God on our side, she will be healed!

  22. dear sweet jesus, i come to you this morning with little avery. father i ask that you give her ultimate healing. i ask that you be her family's side. father just blanket them peace and give avery some comfort as well. your on our side. your our sweet healer and physician. i love you jesus in your mighty holy name AMEN~