24 Hours...and breathe!!!

Wow, what a couple of days! We are now just about at the 24 hour mark without ecmo. We are so proud of our little angel warrior. Dr. Moss said a few minutes ago that Avery is holding her own and the goal today was to "Let her be". She is peeing ok and her blood pressure is borderline. The blood flow to her head is a little on the low side but nothing to get excited about. They are also trying creative ways to get her co2 levels down. Her oxygen levels are actually good enough to ween off of the ventilator a bit. All in all she is kicking a little butt considering she just had open heart surgery 5 days ago! We love her very much and still believe in miracles. Thanks everyone for the extra prayers because God is good...and he is listening!-Shane,Carissa,Kaitlyn and Baby Ave!!

19 Hours and Counting

Hey all. Avery has been off ECMO for 19 hours and is still stable. She has had a couple dips in numbers but is holding her own. I know very little details as I have been totally out of it for the past couple days. I have not spoken to the doctors this morning so I will try to get a better idea of the details soon. Just wanted to let you know that she seems to be doing ok at the moment. Again, things change in an instant, but we are thankful for the time we have.

Carissa

Goodbye ECMO

I just got a text from Shane and Avery did well for one hour during her trial off of ECMO, so they are removing the cannulas right now.

SHE IS COMING OFF!!!!

God is good. Please, keep the prayers coming...that Avery remains stable without the help of ECMO.

Prayers Needed!!!!!

The trial off of ECMO is ready to begin...

I spoke with Shane and he said that if Avery is able to make it off of ECMO today for an extended period of time, then they will keep on fighting right along side of her. However, if she is unable to come off for more than an hour, then they will know that her heart and lungs are unable to sustain life without the help of ECMO and if that's the case, they will most likely remove her from life support.

Needless to say, today is a VERY big day!! Shane said, "We need all the prayers we can get." So please, wherever you are...whatever you're doing...please, stop and say a prayer for Avery. We know that God can perform miracles and He is holding Avery in the palm of his hand.

I will let you all know as soon as I hear anything.

Birthday Girl

I just heard from Shane and Carissa a while ago...

There is not a whole lot to report today. Avery is doing well and the plan for the day is to try to get her off of EMCO. Shane said he would let me know how it goes and as soon as I hear anything I will update.

Today is Avery's 3 week birthday!! Praise God for 21 amazing days with this beautiful, little life-changer! The Keirsey Family is having a birthday party for Avery today and I know that will be fun!

I will let you know how the day goes.

Monday Evening Update

I heard from Shane a little while ago...

They did find a clot during Avery's CT scan. At first, they didn't see anything, but when they took a second look they saw the clot. Shane said they have been told that it could be bad and it could be nothing. It seems that right now it's not their main concern. They are continuing to wean Avery off of ECMO for the second time. I'm guessing that other issues will be addressed after that.

Shane said he and Carissa are worn out! I know this journey that they're on is beyond exhausting. So tonight, please pray for a restful night for the two of them and for Avery to continue to take baby steps in the right direction. But, most of all, please pray for God's grace to surround the Keirsey family as they continue down this uncertain path.

Afternoon Prayers

I just got a text from Shane and he wanted me to update the blog with a new concern.

A head ultra-sound performed on Avery this morning raised some alarm with the doctors. They are seeing what may be a brain bleed or a clot in her brain, so Avery is going to have a CT scan this afternoon.

I just spoke with Carissa and she said it will take a couple of hours since there is so much medical equipment that must follow Avery wherever she goes, but they should have some news before the day is over.

I know they appreciate your love and prayers so much.